“Do we continue to do IVF and deal with all these failed procedures, or do I get pregnant naturally and abort?”

“I had one baby and was pregnant with another when we discovered we were both carriers for a severe and rare genetic condition. We decided to do IVF and have been unsuccessful for over two years now. 

It is so reassuring to hear another case of someone who was expecting it to be easy, had a hard time, but was ultimately successful in the end. We deal with the same thoughts as the woman describes. 

Do we continue to do IVF and deal with all these failed procedures, or do I get pregnant naturally and abort? But if we abort, that is saying the life is not worth living, and that’s such a difficult decision. 

We constantly question whether we are doing the right thing by torturing ourselves with IVF and all the failures we have had so far. Still, ultimately, it’s bringing us some comfort to know that we are protecting future children from suffering.

I also relate to what she said about this being difficult to share. My daughter has the gene, and it is a medical mystery why she is not majorly affected by the condition. She is the only child in the world that they know of that has this condition, and is not severe. We are so grateful to Hashem (G-d) for her health. I would love to share my IVF journey with friends and family, but I am afraid of what it will do to my daughter’s future if it’s known that she has such a severe condition, even if it’s in name only. I don’t want to make that decision for her because, ultimately, it should be up to her since it will potentially affect her when it’s time to get married and have her own children.

Thank you for posting others stories and thanks to the family who shared their story. It is giving me hope and strength to continue the journey.”