The Most Lonely Disease

 

“I first started having symptoms back when I got my first period at 13. Ever since then, I remember excruciating pain and my Dr telling me to take 2 days off from school each month. And in my young mind I was like, absolutely not. What will I do as an adult with responsibilities? I can’t just take 2 days off from life.
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Unfortunately at this point in my life it’s not just 2 days out of the month that I suffer from my symptoms, it’s usually from 2 weeks before I’m supposed to get my period. And add PCOS to the mix, and you get an additional 2 weeks of suffering...
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Endometriosis is the most lonely disease to go through.
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I walked into my doctor’s office after my last period and said, “I don’t want to get one more period. I feel like I’m losing my mind. My husband is getting frustrated with me and I can’t be a mother to my daughter.”
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He gave me a pelvic exam which was excruciating. He felt around and said, “Yes, you have endo.” I actually felt him squeezing my insides long after his hand was out of there.
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But the validation I felt was incredible.”

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Pretending You’re Okay…

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98. The Emotions of Egg Freezing with Nasya Miller